Embracing the new year

Embracing the new year

The chime of the clocks having struck midnight. ‘Auld-lang-syne’ sung. Toast’s made. First Footing, footed and text’s, texted. We went wheel-walking through Queens Park to get some fresh air and stretch our legs.

I think many had the same idea, a lot of people were out, either with Children or walking dogs. It’s always good to see, or guess, what people have received for Christmas. A new bike, a doll and pram, a new phone – wow! so many smartphones. Dog coats, jumpers, leads and collars, everyone had a little something from the receiving of gifts last week.

I hoped to be more positive about my blogs this year, but it is also a record of hopes and fears, and in particular, reality that we can look back on as we seek professional input for our son, but also sharing a sense of reality with anyone who needs to see, they are not alone, if they also have to deal with similar challenges. To that end, I will share that our wheel-walk in the park was short lived as our son was struck, by a particularly unpleasant seizure.

Pushing him in his wheelchair up a hill (as if the timing could have been better) I saw his head an body snap to his left and his body shaking. With some cases of Epilepsy, it is always wise to leave a person having a fit to come out of it themselves due to the incredible strength and random movement can actually do you more harm if you seek to hold them. Making sure they are safe and will not choke and allow them to come around themselves. In our case, I have found our son values being hugged and gradually easing his head and neck back to a front looking position, cradling him until the spasms subside, then the tremors ease and we hold him while his disorientation begins to clear.

I know there are those who must see us in this ‘unusual’ embrace – halfway up a hill, holding onto the wheelchair and adult occupier all together, and decide to walk the opposite direction. Children stare in bewilderment at what they are looking at and all awhile, Lady Bronte is more interested in sniffing the nearest dog or chase the squirrel she has just seen, completely oblivious. In truth, that usual behaviour is appreciated and it keeps us grounded when all things are falling apart.

Ten or fifteen minutes later, our son has recovered sufficiently to begin to move again and my wife leads the way with Lady Bronte back to the car where we have our emergency grab-bag … and the flask of coffee. We take time to drink this – it is medicinal in itself, and then head home.

Maybe 2nd January will be better.

8 thoughts on “Embracing the new year

  1. Life, life, life – you and your wife and Marc seem to be able to cope well with what it throws at you – hugs to you all and pats to Lady Bronte – I wonder if dogs sense what they give us? See recent shot on Flickr ๐Ÿ™‚

    May the 2nd be better!!!

    1. Skippy looks a beautiful dog Jackie and I’m sure is super sensitive to emotions. We had a Labrador many years ago who was stuck to Marc like glue until he passed. Lady Bronte is developing much the same. I’m looking at her lay across Marc’s lap now, just enjoying each others company. As for us coping, we just do what is needed Jackie, nothing special, just what others would do too. After all, we are his mum and dad ๐Ÿ™‚

  2. I admire your devotion and dedication to Marc, Paul!
    And you seem to manage the difficult times well, hopefully today (2nd Jan) might be a better day for you all.

  3. Geez your family likes to live on the edge. (The was a humour, not making fun of). You and your wife are amazing, really. A great team that knows his son.
    Iโ€™m so happy to hear you managed to get back safely to your car. How did he fair for the rest of the night? Poor Marc, poor soul, what do you for him while heโ€™s sleeping. Do you have a camera monitoring him.
    Iโ€™m sorry Paul, I didnโ€™t mean to sound insensitive. I hope you get the answers you are seeking.

    Marc has a wonderful support team. You and your will fight for Marc. You WILL FIND THE ANSWERS โค๏ธโค๏ธ

    1. Hello Diane, Thank you so much for your comment. When Marc has an event like this, recovery can take a number of hours or even days. Our focus is on keeping him safe and calm until he is fully recovered. Each outing does require a back up plan in case of something like this happening. It’s normal for us, but can appear a little ‘strange’ to the casual observer ๐Ÿ™‚

      What you, and others need to know, is that you are all part of his support team and I can’t stress enough the important role your friendships play in his overall happiness and wellbeing. Just to hear your comments as I read them out to him, brighten his day as he realises people (friends) are talking about and to, him.

      Thank you so much ๐Ÿ™‚

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